Bills · HRES 1060
IN COMMITTEE· 119TH CONGRESS
House Res.HRES 1060Health
Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".
INTRO FEB 11· LAST ACTION FEB 11
READING
3MIN
COSPONSORS
11BIPARTISAN
READER REACTIONS0 TOTAL
NO VOTES YET · BE THE FIRST
- Non-binding
LEGISLATIVE PROGRESS
STEP 2 / 8Introduced
In Committee
Reported
Passed House
Passed Senate
Conference
To President
Became Law
WHAT THE BILL DOES
AI-writtenVoters should care about this bill because even though it's a symbolic gesture, official recognition from Congress can significantly boost awareness for rare diseases like Barth Syndrome, which affects a very small number of people and often goes undiagnosed or receives limited research funding.
Increased awareness can lead to greater public understanding, encourage more support for affected families, and potentially attract more resources and scientists to research and develop treatments for the disease. If this resolution doesn't pass, it means one less opportunity for the House of Representatives to formally acknowledge and highlight the challenges faced by those with Barth Syndrome and the ongoing need for medical progress.
KEY PROVISIONS
4AI-extractedPROVISION 01
Supports the designation of April 5, 2026, as 'Barth Syndrome Awareness Day.'
This formal endorsement from Congress helps raise the profile of a rare disease that many people are unaware of.
PROVISION 02
Recognizes the importance of improving awareness and encouraging early diagnosis of Barth Syndrome.
Better public understanding and quicker diagnosis can improve patient outcomes and support for affected families.
PROVISION 03
Recognizes the importance of advancing research and developing new treatments, diagnostics, and cures for Barth Syndrome.
This highlights the ongoing need for scientific and medical efforts to combat this life-threatening genetic disorder.
PROVISION 04
Recognizes the importance of identifying regulatory pathways for drug development of ultrarare diseases.
This emphasizes the unique challenges in bringing treatments to market for diseases that affect very few people.
SPONSORSHIP
1 + 11
D· New York
YRS IN OFFICE
17
BILLS LED
28
COSPONSOR BREAKDOWNBIPARTISAN · 72%
DEM 7 REP 4 IND 0
ACTION TIMELINE
2 EVENTSFEB 11
Submitted in House
FEB 11
Referred to the House Committee on Energy and Commerce.
BILL INFO
TypeHouse Resolution
NumberHRES 1060
Congress119th
StatusIn Committee
IntroducedFeb 11, 2026
Last actionFeb 11, 2026
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IN COMMITTEE· 119TH CONGRESS · ENERGY AND COMMERCE COMMITTEE · INTRODUCED FEB 11, 2026
House Res.HRES 1060Health
Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".
INTRODUCED FEB 11, 2026· LAST ACTION FEB 11, 2026
PASSAGE CHANCES
—%
READING
3 min
COSPONSORS
11
COMPLEXITY
Moderate
