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Voters should care about this bill because it directly addresses the growing concern about the privacy and security of highly sensitive personal data, specifically genetic information, in a digital age. As more people use genetic testing services, their unique biological blueprints are stored by companies, creating a valuable asset that could be exploited if a company fails.
If this bill becomes law, it ensures that your most personal data – your DNA – cannot be treated like a generic asset and sold off during bankruptcy without your explicit say-so. This provides a crucial layer of protection, preventing genetic data from falling into unintended hands or being used for purposes you didn't agree to. If it doesn't become law, the existing bankruptcy framework might allow a bankrupt company to sell off its genetic data assets, potentially to entities whose privacy practices are unknown or undesirable, leaving individuals with less control over their sensitive genetic information.
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Voters should care about this bill because it directly addresses the growing concern about the privacy and security of highly sensitive personal data, specifically genetic information, in a digital age. As more people use genetic testing services, their unique biological blueprints are stored by companies, creating a valuable asset that could be exploited if a company fails.
If this bill becomes law, it ensures that your most personal data – your DNA – cannot be treated like a generic asset and sold off during bankruptcy without your explicit say-so. This provides a crucial layer of protection, preventing genetic data from falling into unintended hands or being used for purposes you didn't agree to. If it doesn't become law, the existing bankruptcy framework might allow a bankrupt company to sell off its genetic data assets, potentially to entities whose privacy practices are unknown or undesirable, leaving individuals with less control over their sensitive genetic information.
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